HELP ACCELERATE RESEARCH FOR

Sanfilippo Syndrome Type A (MPSIIIA)

Study

Location:

Compensation:

Length:

See Participation Requirements

How It Works

It’s a simple three-step process

Step 1: Tell us about yourself

Submit a health profile by answering basic questions about your medical history.

Step 2: See if you qualify

Speak with a research coordinator to learn more about what is required to participate.

Step 3: Participate from Home

Complete study requirements from Home with the help of our mobile health staff.

Frequently Asked Questions

Can I withdraw from the study?

You can withdraw from the study or decline participation at any time for any reason.

How is my information protected?

All of our studies and staff are HIPAA compliant and follow all state and federal regulations. We keep your information confidential. Check out our privacy and protection policies to learn more.

I don't have health insurance. Can I still participate?

Yes. However, to participate in most studies, you will need to provide proof of your diagnosis. Even if you are not currently seeing a physician, you can still sign an authorization for Medical Record Release from your former physician that can serve as proof of diagnosis. Previous medical records can serve as proof of diagnosis.

Why does Sanguine need my medical information?

We may ask you to sign a Release of Medical Records so that we can provide researchers with the data they need to conduct as comprehensive of a study as possible. Your de-identified medical information will help translate laboratory results from collected samples into clinical information that may be used to develop new therapies and/or diagnostics.

Will I get test results from Sanguine?

No. We collect blood and other samples from donors in order to provide scientists with quality samples for their research. We do not perform diagnostic tests.